I know that most of our Angels continue to battle seizures. My own Angel has had his unfair share of uncontrollable seizures and many hospital stays. I am not one to lay down and do nothing while doctors continue to drown my child with medicine that failed to control his seizures. On my journey to find some answers and other options, I read a book about treating seizures that listed "The Charlie Foundation" as a resource. So I looked them up and gave them a call. I discovered the amazing things they are doing so I had to share with you.
Established in 1994 by Jim and Nancy Abrahams to help cure pediatric epilepsy. Their youngest son Charlie had multiple seizures daily, they tried many seizure medications and brain surgery. They ALL failed to control his seizures. One day, Jim went to the library to research seizures and try to find out as much as he could about them. He came across a book about the Ketogenic diet from the 1920's. They took Charlie to John Hopkins Hospital where they were implementing the diet and within DAYS of being on the ketogenic diet his seizures were GONE!
I recently had the privilege to catch up with the Hollywood Movie Director, Jim Abrahams and we got to talk about what life is like as a parent to a child with epilepsy, the Ketogenic diet, the upcoming International Symposium: Dietary Therapy for Epilepsy, and how Charlie is doing now.
As a fellow parent to a child with epilepsy, I wondered how Jim and Nancy could find the time and inspiration to start a foundation. Jim said "It all sort of started with a video they created to help raise awareness about the ketogenic diet and the success that Charlie and so many other children had with it". That video featured family friend and actress Meryl Streep, who also witnessed Charlie's struggles through epilepsy.
Once Charlie had been successful on the diet, Jim and Nancy began to reflect on everything that happened. They wondered how, with seeing several Neurologists and Pediatricians that not a single one EVER mentioned the diet as a viable option.
They were now aware of the statistics of a second anti-convulsant medication only has a 10-15% chance of ever being effective to control seizures. Charlie's doctors kept adding medications and his brain surgery had been for nothing. "We wish we would have been given the lay of the land a lot sooner, so we could have made informed decisions about ALL of our options and we were never told upfront that seizures could potentially be deadly." With these feelings, the desire to help families learn of the ketogenic diet, and the response from the awareness video, the foundation began...
They were now aware of the statistics of a second anti-convulsant medication only has a 10-15% chance of ever being effective to control seizures. Charlie's doctors kept adding medications and his brain surgery had been for nothing. "We wish we would have been given the lay of the land a lot sooner, so we could have made informed decisions about ALL of our options and we were never told upfront that seizures could potentially be deadly." With these feelings, the desire to help families learn of the ketogenic diet, and the response from the awareness video, the foundation began...
Angel Mama - Erin Sheldon says "I can't say enough positive things about the diet and Maggie. I can only imagine what we'd be doing for seizure control or how medicated she'd be without the role of the diet in her seizure management".
If you would like more information click here for a map to find a keto hospital near you or please visit their website www.charliefoundation.org
The Charlie Foundation hosted their Third International Symposium: Dietary Therapy for Epilepsy and Other Neurological Disorders on September 19th, - 22nd, 2012 at the Beautiful Chicago Hilton Indian Lakes Resort
There was a Gala Celebration to honor Three time Acadamy Award Winner Meryl Streep and here is the Tribute video.
http://youtu.be/tPa5s_GXZcI
Jim also told me about a Nutritional supplement powder that has been created to help with the diet called Ketocal. It can also be used for those that have a G-tube. This is a Nutritionally complete, ready to feed keto formula. Helps make the diet a little easier.
Wherever you are in your battle against seizures, I want to encourage you to contact to The Charlie Foundation. They will be more than happy to help you find out if the ketogenic diet is right for your child and help you find a location near you to get started.
Here is a video of Jim being recognized at the 2011Epilepsy Fellowship at UCLA.
It's what happens in the end that makes all the difference... Today, Charlie is doing very well! Jim says "He can eat anything he wants and is seizure free!" He is in his first year of college away from home and doing great!If you would like more information click here for a map to find a keto hospital near you or please visit their website www.charliefoundation.org
The Charlie Foundation hosted their Third International Symposium: Dietary Therapy for Epilepsy and Other Neurological Disorders on September 19th, - 22nd, 2012 at the Beautiful Chicago Hilton Indian Lakes Resort
There was a Gala Celebration to honor Three time Acadamy Award Winner Meryl Streep and here is the Tribute video.
http://youtu.be/tPa5s_GXZcI
Website: www.charliefoundation.org Contact via Email: ketoman@aol.com Phone: (310) 393-2347
My son recently started having grand Mal seizures at 16 years old. We were prescribed Kepler. We decided NOT to take the medicine and go with a Modified Atkins Diet that entails feeding our son 15 carbs a day with lots of healthy fat. He eats a lot of grass fed beef, free range eggs, organic low crab veggies and is doing fantastic! We could tell a difference in him by the 3rd day. This is not alternative or junk science. Dr. Lewis hill at Johns Hopkins has been championing this diet for years and has been really successful. Doctors are really resistant to this therapy but it works!. Read "Grain Brain" for why it works. He also takes taurine which helped stop the night time teeth grinding, jerking, and unrest in his sleep (also known to stop seizures). And he takes cur cumin as a brain protestant that raises seizures.one day came across Albert post thanking Dr Lewis hill for curing his son seizure problem, and i got the contact of Dr Lewis hill i quickly contacted him then he made me to know that the medication is 100% permanent cure, and that was how i got the medicine which i used for my son, after which i took my son for medical test It worked! Over a year now, my son have not show any symptoms of seizure and I believe my son is cure if you need his help email him on drlewishill247@gmail.com or call him on +1(323)244-4884
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ReplyDeleteMy son recently started having grand Mal seizures at 16 years old. We were prescribed Kepler. We decided NOT to take the medicine and go with a Modified Atkins Diet that entails feeding our son 15 carbs a day with lots of healthy fat. He eats a lot of grass fed beef, free range eggs, organic low crab veggies and is doing fantastic! We could tell a difference in him by the 3rd day. This is not alternative or junk science. Dr. Lewis hill at Johns Hopkins has been championing this diet for years and has been really successful. Doctors are really resistant to this therapy but it works!. Read "Grain Brain" for why it works. He also takes taurine which helped stop the night time teeth grinding, jerking, and unrest in his sleep (also known to stop seizures). And he takes cur cumin as a brain protestant that raises seizures.one day came across Albert post thanking Dr Lewis hill for curing his son seizure problem, and i got the contact of Dr Lewis hill i quickly contacted him then he made me to know that the medication is 100% permanent cure, and that was how i got the medicine which i used for my son, after which i took my son for medical test It worked! Over a year now, my son have not show any symptoms of seizure and I believe my son is cure if you need his help email him on drlewishill247@gmail.com
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